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SIAMESE TWINS-JODIE &MARY
Topic for discussion

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Jodie and Mary
Separate or not?
An anonymous couple from Malta traveled to England this past year for a complicated delivery of their Siamese twin daughters, Jodie and Mary, who were born on August 8,2000,joined at the abdomen and with fused spine. Doctors soon determined that unless the twins were surgically separated both would die. Mary, the waeker twin, whose brain was underdeveloped, would never be able to survive separated from Jodie. Jodie, who was strong and aler, had an 80%-90% chance of dying if surgery was not performed. She had a good chance of surviving in the event of surgery,although, in all likelihood she would be severely handicapped and need medical attention throughout her life.In similar cases in the past, the surviving twin has sometimes died within six months of surgery. In other cases, neither twin survives. The medical team at St Mary's Hospital, to which the twins were taken had never done a successful separation of Siamese Twins. When the medical team suggested surgical separation, the Parents, who were Roman Catholic, refused on religious and moral grounds to give their consent. The Hospital went to court pleading that life-saving surgery was in Jodie's best interest, and that saving one of the twins would be morally preferable to losing both. The presiding judge acknowledged the court's duty 'to put the welfare of each child paramount', but nonethless, concluded that Jodie's right to live outweighed Mary's, thus ruling in favor of the Hospital.

Ethical issues

These are the ethical questions that we have come up with to facilitate in our opinion writing pertaining to the case of Jodie and Mary

Q1. Is there an ethical right to separation ?
Q2. Is it morally permissible to let both infants die?
Q3. Does distributive justice play a role in the separation of conjoined twins with multiple anomalies ?


What's Siamese Twins?


Siamese Twins also known as Conjoined twins which are monozygotic multiples that do not fully separate from each other due to the incomplete division of the fertilized ovum. The individuals will be connected at certain points of the body, and may share tissue, organs or limbs. A rare phenomenon, the occurrence is estimated to range from 1 in 50,000 births to 1 in 200,000 births, with a somewhat higher incidence in Southwest Asia and Africa.Approximately half are stillborn, and a smaller fraction of pairs born alive have abnormalities incompatible with life. The overall survival rate for conjoined twins is approximately 25%. The condition is more frequently found among females, with a ratio of 3:1.

More info


why called SIAMESE TWINS?

Famed twins, Chang and Eng Bunker, were born in Siam (now Thailand) in the early 1800's, although they eventually settled in the United States. As they traveled the world, they became known as "the Siamese twins."
While they were the first conjoined twins whose medical history was documented, they were not the first set of conjoined twins. Records reference a set of conjoined boys living in Constantinople in 945 A.D. Another well-known set, Mary and Eliza Chulkhurst, lived in England in the twelth century.

Comments

Take your stand and voice out your opinion, visitors are welcomed to tag your opinions regarding Siamese Twins ( The current topic for discussion is JODIE AND MARY)



News Update


behind the scene

The stories of Siamese Twins
Their lives are not strange but
but tougher than anyone of us.

Faith and Hope [1]
Faith and Hope [2]
Kendra and Maliyah
Lea and Tabea [1]
Lea and Tabea [2]
Abigail and Brittany [1]
Abigail and Brittany [2]
Abigail and Brittany [3]
Abigail and Brittany [4]
Abigail and Brittany [5]
Conjoined Twins


Archives

June 2009

Acknowledgements

Layout: Kary-yan/Missyan.
Conjoined Twins FAQ
Wikipedia



Friday, June 19, 2009

*Related-Articles
The Jodie and Mary twins tragedy
Judges must not play God

Colin Hart, Director of the Institute, said today:
"We do not believe it is right for Jodie to be separated from Mary. "Saving one is better than none" superficially makes sense, but in reality it can never be right for doctors to kill one person to benefit another. Judges and Doctors must not play God. Just because an operation can be performed doesn't make it right.

The twins both share the same heart, lungs and liver, but they are two persons in the sight of God. We know that Mary can suckle, open an eye and respond to touch. She clearly has a functioning brain, but we do not how much.

This is a hard case and there are many difficult issues. But it is precisely these sort of hard cases which can set profoundly important precedents. Our stance is straight forward and we reject the arguments used to justify separation:

(1) Diagnoses
There is much uncertainty about the diagnoses. The first medical opinion said both twins had only three to six months to live whilst the second said it could be years. There is no guarantee that Jodie would survive even if she was separated from her twin sister. As far as is known there has never been a successful separation performed in this type of case : both twins have always died. This kind of conjoined twins is an extremely rare phenomenon so Doctors know very little about it. The quoted probability of Jodie surviving seems to be exaggerated and the views of the parents seem to have been so easily disregarded.

(2) Arguments
There have been many disturbing arguments put forward by Counsel for the health care trust including the ridiculous claim that Mary was attacking Jodie and so Mary could be killed by Doctors acting to defend Jodie. But it is the arguments used by the Judge which matter and Mr Justice Johnson in the first hearing used an argument which would set a very dangerous precedent.

(3) Withdrawing blood supply
Mr Justice Johnson argued that it was in Mary's best interests that she die. The argument was essentially that Mary was not a person.

Mary's blood supply could therefore be withdrawn as if it was a medical treatment. But it can never be right to withdraw someone's blood supply in this way. If it was then it could become legal for doctors to intentionally accelerate death by refusing blood transfusions or ending kidney dialysis treatment. The editor of the Bulletin of Medical Ethics was right to say that legalising the withdrawal of someone's blood supply is to legalise euthanasia.

Every patient needs blood just as every patient needs food and water. I believe that Mr Justice Johnson was profoundly wrong to apply the Tony Bland ruling in this case which has nothing to do with a patient in a persistent vegetative state (PVS). Even supporters of separation (such as Melanie Phillips) believe it is unsupportable to use the Bland ruling.

In the light of this I believe that the Court of Appeal must overturn the earlier judgement which would set a very dangerous precedent. But even if the judgement is overturned separation might still go ahead on new legal arguments.

(4) "Saving one better is than none" is really "ends justify the means"
In English law a deliberate intention to kill is defined as murder. It has therefore been argued that an operation to separate the twins can take place without the deliberate intention of killing Mary. This is based on the argument that Mary's death would be an unintended consequence ("a double effect") of the operation to save Jodie.

Of all the arguments in favour of the operation this by far the strongest and one on which people of integrity are divided. But it falls down on two grounds.

First the principle of double effect must involve a therapeutic benefit to the patient, but there is no benefit to Mary since a separation would kill her.

Second there is no way round the fact that Mary's death is a primary intention of the operation to separate the twins. Indeed it has been argued that it is imperative that Mary be kept alive until the operation since if she dies beforehand Jodie's chances of survival allegedly fall to 1%.

"Saving one better is than none" is really saying the ends justify the means."

Ends.

http://www.christian.org.uk/pressreleases/2000/PressRelease210900.html



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