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SIAMESE TWINS-JODIE &MARY
Topic for discussion

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Jodie and Mary
Separate or not?
An anonymous couple from Malta traveled to England this past year for a complicated delivery of their Siamese twin daughters, Jodie and Mary, who were born on August 8,2000,joined at the abdomen and with fused spine. Doctors soon determined that unless the twins were surgically separated both would die. Mary, the waeker twin, whose brain was underdeveloped, would never be able to survive separated from Jodie. Jodie, who was strong and aler, had an 80%-90% chance of dying if surgery was not performed. She had a good chance of surviving in the event of surgery,although, in all likelihood she would be severely handicapped and need medical attention throughout her life.In similar cases in the past, the surviving twin has sometimes died within six months of surgery. In other cases, neither twin survives. The medical team at St Mary's Hospital, to which the twins were taken had never done a successful separation of Siamese Twins. When the medical team suggested surgical separation, the Parents, who were Roman Catholic, refused on religious and moral grounds to give their consent. The Hospital went to court pleading that life-saving surgery was in Jodie's best interest, and that saving one of the twins would be morally preferable to losing both. The presiding judge acknowledged the court's duty 'to put the welfare of each child paramount', but nonethless, concluded that Jodie's right to live outweighed Mary's, thus ruling in favor of the Hospital.

Ethical issues

These are the ethical questions that we have come up with to facilitate in our opinion writing pertaining to the case of Jodie and Mary

Q1. Is there an ethical right to separation ?
Q2. Is it morally permissible to let both infants die?
Q3. Does distributive justice play a role in the separation of conjoined twins with multiple anomalies ?


What's Siamese Twins?


Siamese Twins also known as Conjoined twins which are monozygotic multiples that do not fully separate from each other due to the incomplete division of the fertilized ovum. The individuals will be connected at certain points of the body, and may share tissue, organs or limbs. A rare phenomenon, the occurrence is estimated to range from 1 in 50,000 births to 1 in 200,000 births, with a somewhat higher incidence in Southwest Asia and Africa.Approximately half are stillborn, and a smaller fraction of pairs born alive have abnormalities incompatible with life. The overall survival rate for conjoined twins is approximately 25%. The condition is more frequently found among females, with a ratio of 3:1.

More info


why called SIAMESE TWINS?

Famed twins, Chang and Eng Bunker, were born in Siam (now Thailand) in the early 1800's, although they eventually settled in the United States. As they traveled the world, they became known as "the Siamese twins."
While they were the first conjoined twins whose medical history was documented, they were not the first set of conjoined twins. Records reference a set of conjoined boys living in Constantinople in 945 A.D. Another well-known set, Mary and Eliza Chulkhurst, lived in England in the twelth century.

Comments

Take your stand and voice out your opinion, visitors are welcomed to tag your opinions regarding Siamese Twins ( The current topic for discussion is JODIE AND MARY)



News Update


behind the scene

The stories of Siamese Twins
Their lives are not strange but
but tougher than anyone of us.

Faith and Hope [1]
Faith and Hope [2]
Kendra and Maliyah
Lea and Tabea [1]
Lea and Tabea [2]
Abigail and Brittany [1]
Abigail and Brittany [2]
Abigail and Brittany [3]
Abigail and Brittany [4]
Abigail and Brittany [5]
Conjoined Twins


Archives

June 2009

Acknowledgements

Layout: Kary-yan/Missyan.
Conjoined Twins FAQ
Wikipedia



Monday, June 22, 2009

The Roman Catholic Diocese of Westminster - Cardinal

(a) Human life is sacred, that is inviolable, so that one should never aim to cause an innocent person's death by act or omission.
(b) A person's bodily integrity should not be invaded when the consequences of doing so are of no benefit to that person; this is most particularly the case if the consequences are foreseeably lethal.
(c) Though the duty to preserve life is a serious duty, no such duty exists when the only available means of preserving life involves a grave injustice. In this case, if what is envisaged is the killing of, or a deliberate lethal assault on, one of the twins, 'Mary', in order to save the other, 'Jodie', there is a grave injustice involved. The good end would not justify the means. It would set a very dangerous precedent to enshrine in English case law that it was ever lawful to kill, or to commit a deliberate lethal assault on, an innocent person that good may come of it, even to preserve the life of another.
(d) There is no duty to adopt particular therapeutic measures to preserve life when these are likely to impose excessive burdens on the patient and the patients' carers. Would the operation that is involved in the separation involve such 'extraordinary means'? If so, then quite apart from its effect on Mary, there can be no moral obligation on doctors to carry out the operation to save Jodie, or on the parents to consent to it.
(e) Respect for the natural authority of parents requires that the courts override the rights of parents only when there is clear evidence that they are acting contrary to what is strictly owing to their children. In this case, the parents have simply adopted the only position they felt was consistent with their consciences and with their love for both children

http://www.rcdow.org.uk/textonly/cardinal/default.asp?content_ref=45


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Jodie and Mary—The Parents View

Zuo Yue (28) 4K

-Should the parents let nature take its course? And not making any effort of save at least one of them?

After reading about the Siamese Twins Jodie and Mary, I’ve decided to take up the role of the parents and to give advice in their situation. According to the news, the twins’ parents have decided to let nature take its course, which is probably letting the twins die on the medical view. And their decision has incurred a lawsuit against the Hospital. I think the parents are in a very hard situation, struggling with their moral values, their love for the child and their religion. They can’t choose to let both live, and they don’t want both to die. Also, because they are Catholics, they do not support “killing” one to allow the survival of another. Due to their status, they are on a very contradicting stand, they would very much want Jodie to live, but to them it’s not morally correct. According to Catholic religion, Mary has a brain, organs( though not functioning) and the only part they are sharing is the bladder, and therefore, Mary is a person and has the right to live. Choosing the path to surgery implies that the doctors, the court are killing Mary, and only by letting things go the way they are is the right choice. The moral value that drove their decision, I believe is impartiality, in the parent’s view, the equal treatments to both children is their main reason for objecting the operation and partially due to compliance to nature. However, this will result in the death of both children as they are not able to outlive 6 months according to the medics, if not separated.

Religion should be respected, but on certain scale, the decisions of parents should not lie entirely in the hands of religion as religion sometimes give rise to prejudice such as “handicapped are better dead” 1. If the decision were to not let the pair undergo surgery, Jodie would not have survived and both of the twins would have been dead due to the incapability to sustain their life. That will be the inevitable and cruel truth but to the parents, is that the NATURE they really want? They are depriving the chance anyone of them to live, then what about the decision of the children? If people would like to say that Mary is killed by the surgery, I would rather they say that Mary has died due to failure of the surgery. In another example about Faith and Hope (see below) , another pair of conjoined twins. They might both die if operation is not performed due to deterioration of organs. They have both died 23 days apart but their parents have made an effort to save them, now, is that to say that their parents have killed them?or rather, they have done their best in SAVING them?

Personally, I do not believe that parents should have total control over the lives of their disabled child, there must be an independent opinion and I think that letting the issue to become a public affair and a legal issue. Supposing the child has Spina Bifida or was brain damaged due to premature birth, and the parents made the decision to withdraw feeding, which is to let the child starve to death, in this situation, many of us will not support the idea. And often in UK or even other countries, parents have the rights to terminate treatment or the lives of their children, sometimes pressurized by medics or religion in this case and their bias opinions (E.g. to terminate the life of the child because of brain death). Therefore, I suggest a solution that there should be independent service available to parents who have disabled children, and provide them with an impartial judgments and suggestions to allow them to “assess”. Making the issue legal and public will also facilitate in “unbiased” decisions.

Footnote

1. A quote from http://www.johnnypops.demon.co.uk/poetry/articles/jodieandmary/livewithdignity.htm by Jane Stewart



♥ love life and live life with dignity... 10:40:00 PM